I have to be honest and say that the bad news CT scan really caught me off guard and was a bit of a sucker punch. I was all ready to have my liver resection. The liver resection isn't canceled forever, but we have to get my lesions back under control.
I have an appointment with Dr. Wheler on Tuesday. I will be entering a clinical trial with a new Aurora Kinase Inhibitor in combination with my very first original chemo...Taxol! So I will be back to getting weekly infusions, losing my hair, and having other strange side effects like a bloody nose, skin issues, etc. It took a couple of weeks, but I think I have my "game face" back on and ready for the next round. What other choice do I have? I will dearly miss Afinitor but I am so thankful for the wonderful year it gave me.
I got to go to New Orleans this weekend for a breast cancer conference. It was the C4YW (conference for Young Women). I decided to go because they had a good choice of breakouts/workshops for metastatic breast cancer and Dr. "Super-Litton" was also speaker at the conference. Me and my good BC buddy, Jessica, were roomies at the event. I really didn't know what to expect and was a little apprehensive. I'm not exactly a "rah-rah" cancer girl and didn't really know if I wanted to hold hands and sing kumbaya with other metastatic ladies. It turned out to be a great weekend. I got to spend a lot of time with Jessica on Bourbon street, I meet a few other metastatic ladies, hung out with Dr. Super-Litton, and got to go to a really amazing workshop on writing final words and/or legacy letters (I know it sounds kinda creepy but it was such a fantastic workshop). Most of all it was good to just hang out with other ladies going through the same issues I face day in and day out. I think it was really good timing for me to network and be around so many cancer gals since I am just about to go down that rabbit hole of chemo again. I feel ready...I feel like I can do it. Here's a couple of pics from this weekend on Bourbon Street.
This is a pic of fellow BC metster, Rhonda, and her sister Sherri and me! They are from Kentucky. Rhonda will be coming down to MD Anderson is a couple of weeks for a second opinion and will be staying at our house. YAY!!!
This is my Htown friend, Jessica, who is a single breast cancer survivor who CLAIMS that she has a hard time meeting men, dating, etc. Sure, Jess. This random guy at Krazy Korner latched on to her and wouldn't take a hint. We eventually had to leave because he was too smitten with her and she wasn't feeling it and got really annoyed with him. Jessica is such the HEARTBREAKER!
I will check in with you guys again later this week to let you know when I will be starting the infusions of Taxol again. I may be needing some chemo buddies, especially if I have to get my infusions in the dungeon of the first floor infusion area for the Center for Targeted Therapy. Ugh! No more Sugarland!
Hi Rachel,
ReplyDeleteI just came across your blog and was doing a bit of skimming. It sounds like we have a lot in common. I'm 30 and was diagnosed with stage IV breast cancer this past October (IDC in left breast with 6-8 small mets in my liver... And in both lobes). This past June, Dr. Curley did a liver resection on me (removed the entire right lobe, gallbladder, and a small wedge resection on the left. All in all removing about 75% of my liver). It looks like you were and hopefully are still planning for a similar surgery, and I'd love to connect with you and share our experiences. If you're up for it, please email me at amy.compeau@gmail.com.
Best of luck to you,
Amy